Tuesday, April 14, 2009

On Second Thought

Well today was pretty much a wash. After not feeding Olivia for 7 hours and waiting for our Liver biopsy time,  we find out that the biopsy was canceled. Ugh... kind of felt like a wasted day. 

There are some Liver associated complications with Cystic Fibrosis, so today she was tested --- again --- for CF and for the first bit of good news in a while she did test NEGATIVE.

The biopsy has been rescheduled for tomorrow morning bright and early (7:30am). They will actually put her under general anesthesia and do a true surgical biopsy (open her abdomen). At the same time they will perform a contrast study on her bile ducts, giving the doctors a true view of the extent and connection of her biliary system. This dye study should give a difinitve answer to whether Olivia has Biliary Atresia or not. 

If the test confirms Biliary Atresia they will then contiue on in surgery and perform a 'palliative' Kasai procedure to help move Bile from her liver to her small intestine.

If the dye study does not show Biliary Atresia, they will close her up and most likely the diagnosis will be Alagille Syndrome.

Tomorrow will be a big day.  Keep us in your thoughts tomorrow.
Posted by at

8 comments:

  1. RachelApril 14, 2009 at 9:13 PM

    Hugs, kisses, and as always...lots of good thoughts! Stay strong guys!

    ReplyDelete
  2. Laura VanOrsdalApril 14, 2009 at 9:16 PM

    Wow - you guys are really being put through the wringer, aren't you? I just caught up on your postings - you and Olivia will continue to be in my prayers and thoughts. I am very glad to hear her CF test was negative. Hang in there!

    ReplyDelete
  3. UnknownApril 14, 2009 at 9:21 PM

    So happy to hear CF is out of the picture. Will anxiouslt wait to see what tomorrow brings. Prayers are with the three of you for strength and comfort. What a powerful strength your family carries !

    ReplyDelete
  4. AmandaApril 14, 2009 at 11:46 PM

    you guys are continually in my thoughts and prayers...i'll cross my fingers for added luck tomorrow! Amanda

    ReplyDelete
  5. UnknownApril 15, 2009 at 12:03 AM

    Hope you get some good news tomorrow to relieve your worry. Olivia's birth announcement is up in front of our dining room table so we see her and think about her often.

    ReplyDelete
  6. AnonymousApril 15, 2009 at 12:18 AM

    We're still here praying for all of you. We have Olivia's picture on the dining room buffet. Marie and Tom Blair

    ReplyDelete
  7. UnknownApril 15, 2009 at 6:54 AM

    Prayers continue for all three of you.God bless

    ReplyDelete
  8. AnonymousApril 15, 2009 at 7:45 AM

    Harriett and I have all of you in our thoughts and prayers.

    ReplyDelete

Subscribe to: Post Comments (Atom)