Home Sweet Home

We made it back home yesterday evening, after one final scare.

Olivia had increased her feedings nicely from 1oz Pedialyte to 50/50 pedialyte/formula to 2 oz formula over about 24 hours. She was acting great, eating well, but hadn't had a 'good' BM yet. When she finally did, Sara noticed some larger reddish/orange flecks & mucous in her stool. This was brought to the nurses attention, and was tested for blood. For the next 2 hours everyone was concerned that there was some GI bleeding that would require a longer hospital stay and more work-up. Finally the Occult Blood test came back as negative, and Olivia was free to go home. What had been seen in in the BM was color left by her multi-vitamin mix -- a fluorescent orange mix --- yum.

Olivia is still adjusting to home, it will probably take a couple days again to get into a nice wake/eat/sleep routine again. 

Everytime she is dismissed from the hospital, her specialist visit list grows. She now has visits setup with her Cardiologist, Nephrologist, and the GI/Liver Specialists. 

We'll keep posting  as these visits come along and things change/improve.