On the Road Again... Again.... and Again.....

This evening we leave for Ann Arbor for a follow-up Liver evaluation Tuesday. Luckily this is a scheduled exam. We're just heading out tonight and spending the night in Ann Arbor, to make tomorrow morning a little easier on everyone.

When we first set up this appointment, we were quite surprised to find out that it would be with the Pediatric Liver Transplant Clinic. Needless to say when we panicked a bit and called them right back. It turned out that this was just the best way to get an appointment with Dr. Lopez, it didn't mean that she was being evaluated as a transplant patient. **WHEW** The packet we received from the clinic showed that Olivia will have a full day tomorrow.

The Bigger Little Peanut will start off the morning with a fun visit to the Phlebotomist to donate more of her blood for testing. This should set the tone really well for the rest of the day.....hah. Then she'll get to meet with Dr. Lopez for her monthly liver check-up. Hopefully the news will be good again, maybe some adjustment to meds because she is growing, but otherwise we are planning for an uneventful visit. The pending Alagille genetic tests might be back by now also, so that could make the day even more interesting.

We are also scheduled to meet with a nutritionist tomorrow, which will be good and give us an idea about Olivia's feeding schedule -- i.e. how long does she stay on formula, when do we start adding solids, what solids & restriction will her condition place on her. From what we have read, heard, been told, nutrition will be critical to managing her Alagille Liver. Who knows this might even cause us to eat a healthier diet....

Wish us luck, the Little O deserves a string of good news.