Olivia will stop anything she's doing when this video comes on -- even though she doesn't really use a pacifier at all.
Be warned, it's a catchy (annoying) little tune you'll have trouble wiping from your mind the rest of the day.
This blog is meant to provide a place for family and friends to follow Olivia's progress in her fight to defeat her Alagille Syndrome. --- Feel free to post any comments and questions.
The other semi-surprise today was that Olivia's Abdominal Ultrasounds (3 in total) taken over the last 2 months, don't all agree on the kidney findings. All the scans showed 'small' kidneys, but one -- the most recent one -- did not mention anything about a multi-cystic right kidney, while both the initial exams did make note of this finding. The possible problem here is that the Ultrasounds were not "Kidney Specific" but were more liver focused. A Kidney Specific Ultrasound has been set up for August to fully evaluate these discrepancies.Our ultasonographer was able to get some very good pictures of Olivia's Kidneys. Her Right Kidney was obviously small